Title: Standard Framework for Secure, Compliant, Coordinated, and Inclusive Healthcare Data Recycling: Cancer Care
Scope: This standard establishes a framework for Secure, Compliant, Coordinated, and Inclusive Healthcare Data Recycling (SCCI-HDR) for the cancer care use case. HDR facilitates the coordinated sharing of comprehensive clinical data throughout the patient care experience, helping to ensure the development of a cohesive data set reflective of care context and outcomes. The framework encompasses: 1) standardized terminology, 2) a conceptual information model incorporating metadata, and supports the seamless integration of various data sources like electronic medical records, medical devices, and telehealth applications.
Purpose: The purpose of this project is to streamline the repurposing of healthcare data for secondary use in clinical research and other healthcare applications. It provides context-sensitive information to diverse collaborators, facilitating the identification of patient-specific care needs to deliver individualized services. The goal is to help ensure access to properly labeled, tested, and evaluated datasets for use in clinical research and healthcare delivery. The standard also supports the creation of secure ‘sandbox ecosystems’ for developing and testing digital health functionalities like Artificial Intelligence (AI).